Researchers should not generally publish or share identifiable individual data collected in the course of research without specific consent from the individual (or their representative).
Informed consent to publish should be obtained from participants (or their parent or legal guardian in the case of children under 16) for all research involving identifiable human subjects. This requirement also applies for deceased persons, in which case consent should be given by the next of kin. Authors are required to attest that consent has been obtained and that any identifiable individuals are aware of intended publication. Examples of identifying information are descriptions of individual case histories, photos, video, x-rays, or genetic pedigrees.
In order to protect participant anonymity, authors do not need to send proof of this consent to us at IOP Publishing. A statement confirming that consent was obtained for all identifiable individuals should appear in the manuscript.
Source: Barbour V on behalf of COPE Council, Journals’ Best Practices for Ensuring Consent for Publishing Medical Case Reports: guidance from COPE, December 2016 www.publicationethics.org